This DMD Family Folder created by Duchenne UK includes information about DMD and how you can look after your child, your family and yourself. It will help you protect their health, manage their education and make the most of life.
Please note information in the folder is based around services provided in the United Kingdom, so not all the information will be relevant to people living in other countries outside of the UK.
“If your child has recently been diagnosed with DMD, you’re likely to be feeling grief-stricken and overwhelmed. As DMD parents, we know how tough it is to hear this news. This folder might help you cope with the diagnosis and plan your child’s care.”
“Understanding your child’s condition will empower you and give you back a sense of control. And it will help you lobby for your child and get them the best possible care.”
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